Here to help
Working for the nerve tumours community
Nerve Tumours UK campaigns, provides support and funds research on behalf of the 26,000 people in the UK who have Neurofibromatosis (NF1 and NF2), Schwannomatosis and Legius Syndrome. We’re here to improve lives for people with nerve tumours, while working towards the day when these conditions will be cured.
“I was a very happy active boy with no known illnesses. When I was 5 years old, I became very unwell with vomiting and lethargy. My parents had noticed some freckling under my arms and groin but had no idea of the significance…”Read more
Emily is an author, speaker and workshop facilitator. Her inspiring and motivational story began when, as an energetic teenager, athlete and skilled musician, she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2)…Read more